From Chairman Elena Bezbozhnaya, HAE Russia (SPHA OPHAE): On hae day :-) 2019, the Interregional Public Organization “Society of Patients with HAE” (SPHA OPHAE) celebrated its third anniversary. Today the organization includes more than 150 people from 40 regions of the Russian Federation, providing administrative and legal support for patients and holding regular specialized scientific conferences, promotion events, seminars and webinars. [...]
From Regional Patient Advocate Michal Rutkowski: I plan to participate in the Immunology Conference in Astana on 5-6 October 2019 dedicated to health care professionals, where a separate HAE track will be organized. I work closely with Sergey Morozov from HAE Kazakhstan to enable organizing patients meeting during the conference dates.
From Michal Rutkowski, Regional Patient Advocate for Central & Eastern Europe As I was unfortunately unable to be in person in Switzerland, I recorded a special video that was presented at Takeda’s offices in Zug and Zürich for hae day :-) 2019. Thus I had a chance to share with the audience the impact [...]
HAE RUSSIA Межрегиональная общественная организация Общество пациентов с Наследственным Ангионевротическим Отеком (МОО ОПНАО) Russia · Central Asia On this page we have pulled together presently available information relevant for HAE patients and caregivers in Russia. HAE online in Russia [...]
HAE KAZAKHSTAN Организация пациентов НАО Казахстан Kazakhstan · Central Asia On this page we have pulled together presently available information relevant for HAE patients and caregivers in Kazakhstan. News and events The latest news from HAEi Click here to [...]
The HAEi Central Eastern European region is a massive one consisting of 12 countries with a population close to 300 million people – and with only around 15 per cent of all HAE patients diagnosed. Therefore, this region requires an individual approach and hands-on assistance in activities related to advocacy, gaining access to and [...]