Hello everyone! I hope you had a fabulous hae day :-) and you did enjoy what HAEi had prepared to celebrate the 10th anniversary of the awareness day. The past few months have been incredibly busy and full of different activities in the regions I am responsible for. Together with Maria Ferron, the Regional [...]
From HAE Russia Pandemic spreading affected the plans of HAE Russia. Many events had to be switched to online. However, even remotely, we actively helped patients with HAE to deal with legal issues, organizing online meetings with doctors, psychologists and lawyers. Representatives of HAE Russia participated in major international events – and during the [...]
The recent months have been busy with plenty of advocacy activities for patients in Central Eastern Europe, Benelux and the Middle East. This period was full of virtual meetings with member organizations, both individual and group, during which we discussed important projects delivered and implemented by HAEi. It is truly amazing to be part [...]
From Chairman Elena Bezbozhnaya, HAE Russia During the challenging time of the COVID-19 pandemic, HAE Russia keeps in touch with patients and supports its members through all available means. In the fall, we have ensured several important events, both online and offline. In early September, when the coronavirus rate slowed down, the School of [...]
In the summer of 2020, Russia adopted legislative changes in the area of health care, which also affected patients with HAE. Therefore, HAE Russia held several events with legal presentations for the members of our organization to better navigate when making important decisions on the treatment and prevention of the disease. In addition, in [...]
From Regional Patient Advocate Michal Rutkowski I have successfully presented the Regional Advisory Group concept and Code of Conduct to all member organizations from Central Eastern Europe and Benelux. None of them had any doubts following the idea, and all countries declared participation in the project. Also, together with Advocacy Contractor Rashad Matraji, we have [...]
From Chairman Elena Bezbozhnaya Early 2020 HAE Russia held several events for the members and organized an educational exhibition at the museums of the two biggest cities of the Russian Federation. In January we conducted a webinar “Effective Health Care: Diagnosis and Treatment of HAE” with members from Novokuznetsk, St. Petersburg, Ulyanovsk, Yekaterinburg, Voronezh, Murmansk [...]
By Michal Rutkowski, Regional Patient Advocate for Central and Eastern Europe, Gulf Region & Middle East: The penultimate weekend of October 2019 saw the largest gathering of the year of the HAE International Central Eastern Europe community. As has become the tradition, the capital city of Poland hosted for the fourth consecutive time the annual regional advocacy event, dedicated to [...]
From Regional Patient Advocate Michal Rutkowski: It is very exciting to see the work of Dr Mariam Movsisyan from Allergology and Clinical Immunology Department of Yerevan State Medical University in Armenia. With the help of the Armenian Relief Fellow Alumni Association and an EU grant, ten HAE seminars were organized in four regions of the country. To understand more how rare and [...]
HAE International is happy to inform you that country no. 79 - Armenia - has just been added to our global map. The national contact in Armenia is Artashes Harutyunyan.
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
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8700 Horsens
Denmark
gro.ieah@ofni
