From HAE Switzerland Unfortunately, due to the corona virus, the last two patient meetings could not take place. The Federal Council has now given the go-ahead for such events, and we are again planning with full vigor. On 30th April 2022 we will meet at Hotel Arte in Olten. The following topics are planned: [...]
From Regional Patient Advocate Jørn Schultz-Boysen We are still working on bringing together the Regional Medical Advisory Panel for the region. Some doctors are on board, and for some countries, we are waiting for a confirmation of who should join. The first round of dialogue has already been ongoing. Still, it will be great [...]
From Regional Patient Advocate Jørn Schultz-Boysen The Regional Medical Advisory Panel (RMAP) is still taking form for the region. While some doctors have already agreed to participate, some countries are still in dialogue. The first dialogue is ongoing for the panelists who have joined, and interesting work and findings are already coming in. I [...]
From HAE Switzerland: The Swiss HAE Association turned 20 years of age on 2 September 2021. An anniversary excursion with our members and our HAE network was planned. However, due to the spread of the coronavirus and the difficulties in assessing the situation, we had with a heavy heart to cancel this trip already [...]
After an amazing and successful hae day :-) with lots of activities from HAE patients, caregivers, health care professionals and industry, it continues to be wonderful reading about all the countries that participated on haei.org. The information about the countries, from past to present and looking ahead towards the next ten years is both [...]
This input is dated May 2021 >> View content in Deutsch In brief Name for organization: HAE Switzerland 72 members at 1 Jan 2021 Name of approved HAE treatments: Berinert P Berinert SC Cinryze Firazyr Takhzyro Tranexamic acid: Cyklokapron Fun/interesting facts 8 HAE centres. Very good HAE [...]
From Greber Ernst, HAE Schweiz: Unfortunately, this corona pandemic also affects the planning of HAE Switzerland. This year our association can celebrate its 20th anniversary and we would have loved to use this occasion for inviting our members and our HAE network to an excursion. We were looking forward to a great time and [...]
A lot of things have been going on in my region in March, April and May. Much is, of course, related to the hae day :-) celebration that has kept so many of us busy with all kinds of activities. It’s been amazing to see a great number of people from many countries join [...]
It has been a pleasure starting as the Regional Patient Advocate for the Nordics and Germany, Austria and Switzerland. It is fantastic to meet – mostly online – with many of the member organizations’ representatives as there are so many things to talk about. And not least for me to learn from these amazing [...]
From HAE Switzerland Again, the coronavirus has its grip on Switzerland. By the end of October 2020, restrictions and measures against the virus have been reinforced due to increasing infection numbers. Newspapers and online news are only covering one topic. Despite these very difficult times, we are very pleased to be able to share [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
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