I am so happy to catch up with you again and share what happened over June, July, and August. It has been a hectic period, full of advocacy activities and crucial successes. First, I would like to share with you some wonderful news about the situation of HAE patients in my home country, Poland. [...]
This input is dated May 2021 >> View content in русский In brief Name for organization: Interregional Public Organization “Society of Patients with Hereditary Angioedema” More than 200+ members from all over Russia at 1 Jan 2021 Name of approved HAE treatments: Basic therapy-Danazol( Danol), tranexamic acid On-demand: Icatibant, C1 [...]
From Chairman Elena Bezbozhnaya, HAE Russia: In Russia, many restrictions imposed due to the spread of the COVID-19 pandemic have already been lifted. The activities of HAE Russia are gradually returning to the face-to-face format, although many events are still conducted both offline and online. In Spring 2021, we held the fourth International Conference [...]
By Michal Rutkowski, Regional Patient Advocate for Central Eastern Europe, Benelux and Middle East It has become a tradition that each year October brings the largest annual gathering for the HAEi community in Central Eastern Europe and Benelux. Part of the tradition is that Poland hosts a yearly regional advocacy event dedicated to patients, [...]
From Chairman Elena Bezbozhnaya, HAE Russia Under quarantine, providing support for patients with HAE takes on special significance. HAE Russia launched a new online project for children and held several remote meetings for members for the patients to receive medical and legal advice. Call a friend: In March, we launched a new psycho-emotional support [...]
HAE RUSSIA Межрегиональная общественная организация Общество пациентов с наследственным ангионевротическим отеком Russia · Central Asia · Europe On this page we have pulled together presently available information relevant for HAE patients and caregivers in Russia. HAE online in Russia [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
