I have been in contact with Lisa Facciolla from HAEA regarding the Brady Club. I’ve reached out to the member organizations in my region asking who are interested in receiving the kids’ material in Spanish. These countries have demonstrated interest: Argentina, Brazil, Chile, Colombia, Ecuador, Mexico, Paraguay, Peru, Uruguay, and Venezuela. I am coordinating with Lisa on the best way to make the material available to the countries. They will get an online version of the material as well as printing one in case they want to have it printed locally. Also, I have connected Lisa with João from HAE Brazil (ABRANGHE) to have the Brady Book available in Portuguese.
I have supported with the translation into Portuguese of the HAEi TrackR, and I have informed by email and WhatsApp to the leaders of the member organizations about the launch of the HAE TrackR app, and I have collected feedback on the app in my region.
HAEi Connect is now implemented in Peru and Colombia. I have followed the implementation up with the leaders in Peru and Colombia and am supporting them with the use of the tool.
Furthermore, I have recorded a video for the HAEA Summit, talking about access to HAE medication in Brazil.
The member organization leaders have been informed on the HAEi Advocacy Academy Exclusive Area, and I have provided them with the exclusive codes – and obviously encouraged the leaders to do the courses. I have joined the Advocacy Academy and trained myself in topics like hosted website and HAEi Connect. The translation into Portuguese seems to be good.
Also, there have been posts on Instagram – feel free to follow at @haei_sudamerica_y_mexico.
