News from Slovenia
HAE Slovenia now has a website under the wings of HAE International. You will find it at https://haeslovenia.haei.org.
2019 HAEi Regional Workshop South Eastern Europe
By Natasa Angjeleska, Regional Patient Advocate for South Eastern Europe: We successfully managed to realize the fourth regional HAE International South Eastern Europe workshop at the Marriott Hotel in Skopje, North Macedonia 27-29 September 2019. We had 85 participants representing 11 countries from the region, including one guest physician coming from Belarus that expressed interest to join us. The composition of [...]
News from Slovenia
An article about HAE has been published in a media in Slovenia in which Teja Iskra from HAE Slovenia discussed her experience with HAE and professor Mitja Kosnik from the Golnik Clinic explained about the disease genetics and treatment options.
News from Slovenia
The HAE International map has another big national update – this time seven HAE knowledgeable hospitals in Slovenia. Have a look at https://haei.org/haemember-countries/slovenia.
News from Slovenia
From Regional Patient Advocate Natasa Anglejeska: In Slovenia, there have been some barriers preventing a patient organization specifically for HAE being registered. As a result, the patient representative Teja Iskra is in contact with rare diseases societies and is hoping to have HAE officially supported by one of these organizations. Teja Iskra was also invited [...]
