Hello everyone! I hope you had a fabulous hae day :-) and you did enjoy what HAEi had prepared to celebrate the 10th anniversary of the awareness day. The past few months have been incredibly busy and full of different activities in the regions I am responsible for. Together with Maria Ferron, the Regional [...]
The recent months have been busy with plenty of advocacy activities for patients in Central Eastern Europe, Benelux and the Middle East. This period was full of virtual meetings with member organizations, both individual and group, during which we discussed important projects delivered and implemented by HAEi. It is truly amazing to be part [...]
From Regional Patient Advocate Michal Rutkowski The September-October period was intense in terms of my involvement in various activities in the regions. First of all, the main activity was the preparation of the 2020 HAEi Virtual Regional Workshop Central Eastern Europe & Benelux, which is extremely time-consuming. With the global pandemic limitations, the HAEi [...]
From Regional Patient Advocate Michal Rutkowski I am delighted to report that thanks to the HAE International hosted website tool HAE Poland (the Swelling Beautifully Association) has launched a completely new web, containing a number of user-friendly features both for patients and health care professionals. Above all, the site has become a fully digital [...]
From Regional Patient Advocate Michal Rutkowski I have successfully presented the Regional Advisory Group concept and Code of Conduct to all member organizations from Central Eastern Europe and Benelux. None of them had any doubts following the idea, and all countries declared participation in the project. Also, together with Advocacy Contractor Rashad Matraji, we have [...]
HAE SAUDI ARABIA Saudi Arabia · Middle East On this page we have pulled together presently available information relevant for HAE patients and caregivers in Saudi Arabia. HAE online in Saudi Arabia Visit our website [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
