NEWS
News from China
From HAE China In 2023, we promoted through official accounts and celebrities on multiple well-known social media platforms while organizing various offline activities to expand our organizational influence and continuously achieve good results. The [...]
News from Chile
From HAE Chile This year, HAE Chile has progressed in several areas: The organization has contributed with a child’s story to the Brady Club book. The organization launched “Aeh Ayuda” in 2023 – a [...]
News from Canada
From Michelle Cooper (HAEC President and Ontario Regional Director), Jacquie Badiou, (Past President), and Daphne Dumbrille (COO), HAE Canada In October, HAE Canada President, Michelle Cooper, along with COO, Daphne Dumbrille, were given the [...]
News from Brazil
From Raquel de Oliveira Martins, HAE Brazil (Abranghe) Public hearing about HAE: HAE Brazil, Abranghe, was invited to participate in the public hearing at the Health Committee of the Chamber of Deputies on 16 [...]
News from Belarus
From Viktar Lebedz, HAE Belarus A year ago, in December 2022, updated official protocols for treating HAE attacks were approved. For the first time, C1 inhibitor drugs and lanadelumab were included in the treatment [...]
News from Austria
From Christian Müllner, HAE Austria Report from the Annual Meeting in Graz on 30 September, 2023, at Hotel Weitzer. Our chairperson, Heidi Huemer, welcomed 35 participants (patients, doctors, medical professionals, pharmaceutical representatives) to our [...]
Countdown to hae day :-) 2024
If it isn’t in your diary already, mark 16 May 2024 for hae day :-) This is our annual celebration of the HAE community and our focus on awareness-raising efforts. We are already thinking [...]
Pharming announces updated 2023 guidance and expects 10% growth in Ruconest revenue
Pharming Group announces updated full year 2023 guidance and expects 10% growth in Ruconest revenue, significantly exceeding prior guidance Pharming Group announces updated full year 2023 guidance, including Ruconest revenues. For the full year [...]
HAEi Research in 2023
It has been a research and science-filled year for HAEi. We’ve been active with our research programs, have had more inquiries about our methodologies than ever before, delivered very successful scientific tracks at our [...]
BioCryst announces preliminary 2023 Orladeyo net revenue of $325 million and provides 2024 guidance
BioCryst announces preliminary full year 2023 Orladeyo (berotralstat) net revenue of $325 million, provides 2024 guidance and accelerated path to profitability Biocryst Pharmaceuticals Inc announced preliminary, unaudited Orladeyo (berotralstat) net revenue for the fourth [...]
Pharvaris Provides Business Update and Outlines 2024 Strategic Priorities
Pharvaris provided business updates and outlined its strategic priorities for 2024. Berndt Modig, Chief Executive Officer of Pharvaris, said: “Pharvaris enters the new year having demonstrated deucrictibant’s potential to be the preferred option for [...]
Intellia highlights its anticipated 2024 key milestones
Intellia Therapeutics highlights its anticipated 2024 key milestones Intellia Therapeutics today announced its strategic priorities through 2026 and key anticipated 2024 milestones that support the company’s mission to transform the lives of patients and [...]
LEAP Class of 2023: Projects with Member Organizations
Our successful LEAP 2023 Graduates are now well into the project phase of the program. Thanks to their hard work, a wide range of programs are underway to put what they learned into practice [...]
In Their Own Words
As part of the Youngsters' Community Review and Round-up in the December issue of Global Perspectives, two of the Youngsters’ Community Advisory Group give us their reflections on 2023 and share their excitement about [...]
HAEi Youngsters Community Review and Round-Up
Looking Back at 2023 and Forward to 2024 Hello everyone What a year! The Youngsters’ Community goes from strength to strength. Whether we are in person at the Youngsters’ Track of the 2023 HAEi [...]
All about Women with HAE
In the December 2023 issue of Global Perspectives, we introduced a new, occasional feature called Did You Know? The first topic was All About Women with HAE: Puberty, Pregnancy, and Pediatrics. Earlier this year, [...]
Talking to … Quick Fire Questions in HAE
In the December 2023 issue of Global Perspectives, we introduced a new, occasional feature of Global Perspectives, where we hear from some of the key people in HAE today to ask them what’s really [...]
ACARE Answers
We asked ACARE centers from our Asia Pacific, Americas, and EMEA regions to tell us a little about their journey. This time, we hear from Professor Anete Grumach, University Centre FMABC Medical School in [...]
All about ACARE
Hello everyone. My name is Rachel. You might’ve met me. I’ve lived with HAE from a very young age, enduring unpredictable attacks and remaining undiagnosed during my childhood. I empathize with the emotions associated [...]
A New Lease of Life
Across the globe, the HAEi family of Member Organizations (MO) has grown to 99. With such a large number of groups doing incredible work to support people living with HAE, it can take a [...]
Advocacy is Proactivity
At the recent 2023 HAEi Regional Conference EMEA, we got to sit down with HAEi Leadership (from left), Henrik Balle Boysen, Tony Castaldo, Fiona Wardman, and Jørn Schultz-Boysen. We spoke to them about their [...]
KalVista Announces Publication of First Oral Factor XIIa Data
KalVista Pharmaceuticals Announces Publication of First Oral Factor XIIa Data in Frontiers in Pharmacology KalVista Pharmaceuticals announced that data from the first report of an oral, potent, and selective FXIIa inhibitor has been published [...]
Global Perspectives #3 2023 is ready for you
The last 2023 issue of Global Perspectives magazine is now available for download. Read the latest news and hear from our global community. This issue includes: 2023 Highlights and hopes for 2024 from the HAEi Regional Patient Advocates [...]
BioCryst announces publication of data from open-label extension of the APEX-2 pivotal trial of Orladeyo (berotralstat)
BioCryst announces publication of data from open-label extension of the APEX-2 pivotal trial of Orladeyo (berotralstat) Biocryst Pharmaceuticals Inc today announced that data from the open-label extension (OLE) of the APeX-2 trial of oral, [...]
Ionis announces European licensing agreement with Otsuka for donidalorsen in HAE
Ionis announces European licensing agreement with Otsuka for donidalorsen in hereditary angioedema Ionis Pharmaceuticals Inc today announced that it has entered into a license agreement with Otsuka, under which Otsuka obtains exclusive rights in [...]
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hae day :-) 2024
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