I am so happy to catch up with you again and share what happened over June, July, and August. It has been a hectic period, full of advocacy activities and crucial successes. First, I would like to share with you some wonderful news about the situation of HAE patients in my home country, Poland. [...]
This input is dated May 2021 >> View content in Nederlands In brief Name for organization: Association for Angio Edema 150 members at 1 Jan 2021 Name of approved HAE treatments: Any treatment is allowed Fun/interesting facts A unique network of general practitioners Storm surge barrier (Delta works) Windmills [...]
By Michal Rutkowski, Regional Patient Advocate for Central Eastern Europe, Benelux and Middle East It has become a tradition that each year October brings the largest annual gathering for the HAEi community in Central Eastern Europe and Benelux. Part of the tradition is that Poland hosts a yearly regional advocacy event dedicated to patients, [...]
Hello everyone! I hope you had a fabulous hae day :-) and you did enjoy what HAEi had prepared to celebrate the 10th anniversary of the awareness day. The past few months have been incredibly busy and full of different activities in the regions I am responsible for. Together with Maria Ferron, the Regional [...]
By Michal Rutkowski, Regional Patient Advocate for Central and Eastern Europe, Gulf Region & Middle East: The penultimate weekend of October 2019 saw the largest gathering of the year of the HAE International Central Eastern Europe community. As has become the tradition, the capital city of Poland hosted for the fourth consecutive time the annual regional advocacy event, dedicated to [...]
From President Jan van Leeuwen The Association for Angio Edema Netherlands is an association with about one hundred and fifty members. We deliberately do not use the name “hereditary” because we represent the hereditary as the acquired angioedema. There are good facilities in the Netherlands; we can always go to university hospitals because the information is stored in the European knowledge center [...]
HAE NETHERLANDS Vereniging voor Angio Oedeem The Netherlands · Europe On this page we have pulled together presently available information relevant for HAE patients and caregivers in The Netherlands. HAE online in The Netherlands Visit us on [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
