From Lim Yong Hao, HAE Singapore HAE Singapore’s membership has recently broken into double digits with 11 members, consisting of patients and caregivers. We are slowly growing and hope to reach and engage the other HAE patients and their caregivers in Singapore. There are also more physicians in Singapore who are taking care of [...]
From Jørn Schultz-Boysen, Vice President, HAE Scandinavia “Stronger Together”: Highlights from the 2023 Scandinavian Conference by HAE Scandinavia in Malmö: The welcoming city of Malmö, Sweden, played host to a memorable gathering from 10-12 November 2023, as HAE Scandinavia proudly presented the 5th Scandinavian Conference. Embracing the theme “Stronger Together,” more than 100 participants [...]
From HAE Russia September: HAE Russia, together with the National Medical Research Center for Pediatric Hematology, Oncology and Immunology, named after Dmitry Rogachev, began a sociological study to study the quality of life and psychological state of patients diagnosed with HAE: The relationship between the intensity of swelling and the level of quality of life [...]
From HAE Puerto Rico The Immunology and Allergy Association of Puerto Rico had an annual congress where the HAE topic was part of the agenda. Many doctors made some presentations and talked about the efforts, new treatments, and studies about HAE. Prof. Marc Riedl, Clinical Director, US HAEA Angioedema Center in San Diego, California, [...]
From Michal Rutkowski, HAE Poland In late June/early July, HAE Poland (also known as the Swelling Beautifully Association) organized the first-ever HAE Poland Youngsters Summer Workshop. This event was part of Dominika Blacharska’s HAEi LEAP project; Dominika is an HAEi Youngsters Advisory Group member and an HAE Poland Regional Patient Advocate. The project was [...]
From Carla M. Goachet Boulanger, HAE Peru This year, we have participated in 2 rare disease campaigns in the interior of the country. In February, we were in the city of Piura at the Cayetano Heredia Regional Hospital of Piura, and recently, in October, in the city of Arequipa at the Honorio Delgado Hospital. [...]
From HAE Paraguay In 2023, HAE Paraguay managed to contact the Health Sciences Research Institute, the Instituto de Investigaciones en Ciencias de la Salud (IICS) of the National University of Asunción (UNA), specifically with researchers from the Department of Immunology. A project entitled “Study of the C1 plasma inhibitor in patients with and without [...]
From HAE Panama During the celebration of the Central American and National Congress of Otorhinolaryngology, held in Panama, 16-18 November 2023, the topic of HAE was addressed by Dr. Olga M. Barrera, medical advisor of the Panamanian Association of Patients with HAE, which motivated a lot of interest among those attending that specialty. [...]
From HAE Pakistan HAE Pakistan has been busy in the country to educate and create awareness of HAE. Mr. Shakeel Afridi has arranged productive awareness sessions in medical colleges and institutes. The first session on 28 September was with collaborators at the Rehman Medical College in Peshawar. We had lots of participants who showed [...]
From Maria (Marijk) Beekman-Kortekaas, President HAE The Netherlands It’s hard to believe that we’re already wrapping up the year. So many great things have happened since January. We worked hard to reinvigorate HAE The Netherlands. We managed to create a new website. We’re grateful that our HAE specialists at the ACARE center in Amsterdam [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
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HAE International (HAEi)
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8700 Horsens
Denmark
gro.ieah@ofni
