Patient stories

Patient stories 2018-08-27T13:07:42+00:00

HAE patients born or living in Australia, Belarus, Brazil, Denmark, Hungary, Israel, Japan, Kenya, Lebanon, Norway, Poland, Russia, the United Arab Emirates, the United Kingdom, and the USA let you in on their stories. Meet the university lecturer, the truck driver, the retired nurse, the operations manager, the businesswoman, the cattle farmer, the architect, the student, and many more.


Arianna Kitzinger, Hungary (1964)

After a childhood full of mysteriousness and misery, Arianna Kitzinger now leads a relatively serene life with manageable HAE attacks. For a long time, she did not know how to face or handle her condition but fortunately met the right doctor just as she was on the verge of giving up hope. “It’s never too late”, she confirms when recalling the memories of a rare life with a rare disease.

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Patient stories

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