By Michal Rutkowski, Regional Patient Advocate for Central Eastern Europe, Benelux and Middle East It has become a tradition that each year October brings the largest annual gathering for the HAEi community in Central Eastern Europe and Benelux. Part of the tradition is that Poland hosts a yearly regional advocacy event dedicated to patients, [...]
Hello everyone! I hope you had a fabulous hae day :-) and you did enjoy what HAEi had prepared to celebrate the 10th anniversary of the awareness day. The past few months have been incredibly busy and full of different activities in the regions I am responsible for. Together with Maria Ferron, the Regional [...]
The recent months have been busy with plenty of advocacy activities for patients in Central Eastern Europe, Benelux and the Middle East. This period was full of virtual meetings with member organizations, both individual and group, during which we discussed important projects delivered and implemented by HAEi. It is truly amazing to be part [...]
From Regional Patient Advocate Michal Rutkowski I have successfully presented the Regional Advisory Group concept and Code of Conduct to all member organizations from Central Eastern Europe and Benelux. None of them had any doubts following the idea, and all countries declared participation in the project. Also, together with Advocacy Contractor Rashad Matraji, we have [...]
From Regional Patient Advocate Michal Rutkowski: Together with HAE Ukraine, I have been working on preparations for the national summit to be held in Ukraine.
From Regional Patient Advocate Michal Rutkowski I organized and held Regional Workshops in Wroclaw and Lodz, Poland, during February. Together with HAE Ukraine, I have been working on preparations for the national summit to be held in Ukraine – and along with HAE Belarus, I have worked on the concept and schedule for the immunology [...]
By Michal Rutkowski, Regional Patient Advocate for Central and Eastern Europe, Gulf Region & Middle East: The penultimate weekend of October 2019 saw the largest gathering of the year of the HAE International Central Eastern Europe community. As has become the tradition, the capital city of Poland hosted for the fourth consecutive time the annual regional advocacy event, dedicated to [...]
One more HAE knowledgeable hospital has been added to the HAE International map, this time in Lviv, Ukraine – please see https://haei.org/location/hospital-lvivukraine.
The HAEi Central Eastern European region is a massive one consisting of 12 countries with a population close to 300 million people – and with only around 15 per cent of all HAE patients diagnosed. Therefore, this region requires an individual approach and hands-on assistance in activities related to advocacy, gaining access to and [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
