HAE 2017-05-31T19:25:08+00:00

HAEi is the international umbrella organization for the world’s Hereditary Angioedema (HAE) patient groups.

HAEi is dedicated to raising awareness of C1-inhibitor deficiencies around the world. We strive to improve time to diagnosis and facilitate access to and reimbursement of life saving HAE therapies, which will enable lifelong health for all patients – no matter where they live.

Suffering from HAE? You are not alone!

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Read the latest news from HAEi

27Jun, 2017

Regional Patient Advocate for sub-Sahara Africa

Early 2016 HAEi appointed five Regional Patient Advocates, dividing a [...]

23Jun, 2017

FDA approves first subcutaneous C1 Esterase Inhibitor

The U.S. Food and Drug Administration has approved Haegarda, the [...]

2Jun, 2017

Thousands helped raise HAE awareness step by step

On and around hae day :-) 2017 a group of [...]

>> See list of all news here

Check out HAEi events around the world

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– Language: Danish
Tivoli
København Denmark

Jun 30, 2017 at 7:30 am - 11:30 pm

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– Language: English
Hotel NH Frankfurt Mörfelden
Mörfelden-Walldorf Germany

Aug 3, 2017 - Aug 6, 2017 at All Day

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– Language: English
Miami Whitewater Forest
Harrison OH United States

Sep 9, 2017 at All Day

>> See list of all events here

Read the newsletters sent from HAEi to our subscribers

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>> See list of all newsletters here
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Find HAE “Points of Interest” relevant to you

 

Missed opportunities due to HAE

It’s important to get the right treatment to get the most out of life

Patients report that HAE has hindered their education and work opportunities.

Getting the right treatment will allow you to live a normal life without missing out on education and job opportunities.

Percentage of patients reporting severe impact from HAE on education and career:

Impacted career advancement 57 %
Unable to consider certain jobs 69 %
Impacted career choices 63 %
Did not go as far in school as desired 40 %

Download the full “State of Management of HAE in Europe” report and get all the usefull insights

Take me to all the useful resources
Read the stories of HAE patients from around the world

HAE patients from all corners of the world share their stories, inspiring other patients and proving that it is in fact possible to lead a close to normal life with HAE.

Reach out to HAEi

At HAEi we are constantly focusing on how to improve the awareness of HAE, and how to create a better environment for timely diagnosis and access to therapies.
Your experience and your story can help us. Reach out to us!

Say hello!

Your personal story, an invitation to your community’s event, local or national news, feedback, questions …

All that and much more is always welcome in HAEi’s mailbox.

So please, send us a message, if you have anything you want to share with us.

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