HAE 2017-12-14T23:27:07+00:00

HAEi is the international umbrella organization for the world’s Hereditary Angioedema (HAE) patient groups.

HAEi is dedicated to raising awareness of C1-inhibitor deficiencies around the world. We strive to improve time to diagnosis and facilitate access to and reimbursement of life saving HAE therapies, which will enable lifelong health for all patients – no matter where they live.

Suffering from HAE? You are not alone!

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Read the latest news from HAEi

15Dec, 2017

KalVista Reports Second Quarter Results

KalVista Pharmaceuticals, Inc. today reported operational and financial results for [...]

7Dec, 2017

The dawn of a new era of HAE management

Symposium 19th June 2017 - as part of the European [...]

28Nov, 2017

Supplemental Biologics License Application to FDA

Pharming Group N.V. has submitted a supplemental Biologics License Application [...]

>> See list of all news here

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Mar 10, 2018 at All Day

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– Language: English

Mar 24, 2018 - Mar 28, 2018 at 10:00 am - 3:00 pm

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– Language: Global

May 16, 2018 at 12:00 am

>> See list of all events here

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27Sep, 2017
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HAEi Magazine June 2017

30Mar, 2017
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Find HAE “Points of Interest” relevant to you


Missed opportunities due to HAE

It’s important to get the right treatment to get the most out of life

Patients report that HAE has hindered their education and work opportunities.

Getting the right treatment will allow you to live a normal life without missing out on education and job opportunities.

Percentage of patients reporting severe impact from HAE on education and career:

Impacted career advancement 57 %
Unable to consider certain jobs 69 %
Impacted career choices 63 %
Did not go as far in school as desired 40 %

Download the full “State of Management of HAE in Europe” report and get all the usefull insights

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Read the stories of HAE patients from around the world

HAE patients from all corners of the world share their stories, inspiring other patients and proving that it is in fact possible to lead a close to normal life with HAE.

Reach out to HAEi

At HAEi we are constantly focusing on how to improve the awareness of HAE, and how to create a better environment for timely diagnosis and access to therapies.
Your experience and your story can help us. Reach out to us!

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