HAEi is the international umbrella organization for the world’s Hereditary Angioedema (HAE) patient groups.
HAEi is dedicated to raising awareness of C1-inhibitor deficiencies around the world. We strive to improve time to diagnosis and facilitate access to and reimbursement of life saving HAE therapies, which will enable lifelong health for all patients – no matter where they live.
If you cannot find an active patient group in your country – it’s because we are looking for someone like you! Join HAEi and our global advocacy efforts. We help patients and relatives establish patient organizations around the world.
At HAEi we are constantly focusing on how to improve the awareness of HAE, and how to create a better environment for timely diagnosis and access to therapies. Your experience and your story can help us. Reach out to us!
Your personal story, an invitation to your community’s event, local or national news, feedback, questions …
All that and much more is always welcome in HAEi’s mailbox.
So please, send us a message, if you have anything you want to share with us.
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