This input is dated May 2021 In brief Name for organization: HAE Australasia (Australia and New Zealand) Patient group started in 2010 – now HAE Australasia (2013) 38 members at 1 Jan 2021 Name of approved HAE treatments: Icatibant – for acute attacks (ages 2 and above) Fun/interesting [...]
This input is dated May 2021 In brief Name for organization: HAE Australasia (Australia and New Zealand) HAE Australia (formalised) patient group started in 2011 – now HAE Australasia (2013) 268 members at 1 Jan 2021 Name of approved HAE treatments: Berinert IV & Subcutaneous – prophylaxis (8 attacks or [...]
From CEO Fiona Wardman, HAE Australasia HAE Australasia held a strategy meeting to talk about current and new projects for the year ahead. We have some exciting and useful ideas for projects and initiatives, and we look forward to bringing them to fruition. HAE Australasia is very proud of the videos and downloadable documents [...]
During the past few months, I have been working with member organizations in my region to nominate physicians for the Regional Medical Advisory Panel (RMAP) project. I am pleased with the confirmation from the nominated doctors who have accepted to be panelists. I look forward to holding the first RMAP meeting in the next [...]
From CEO Fiona Wardman, HAE Australasia: HAE Australasia held a webinar for patients and carers in New Zealand with Dr. Karen Lindsay, Dr. Hilary Longhurst for physicians and research updates. The webinar was recorded and has been uploaded to our YouTube channel: https://youtu.be/DsdKUdTDHJQ. One of our younger HAE patients from Perth, Western Australia, has [...]
From Director Fiona Wardman, HAE Australasia: HAE Australasia recorded a Q&A video with Prof. Connie Katelaris in June. The questions and answers related to COVID-19, existing and new treatment options, clinical trials, and a new support service was announced for patients in Australia and New Zealand. The video has been uploaded on to our [...]
From CEO Fiona Wardman, HAE Australasia HAE Australasia Youth Group is up and running, and the group facilitator Jess has done a great job in connecting some of our youth from Australia and New Zealand. We would encourage more youth to join the group as we have some projects and a competition for them [...]
From Regional Patient Advocate Fiona Wardman I had planned to hold the first HAEi Regional Workshop Asia Pacific in Singapore in April; however, due to COVID-19, the workshop has been postponed until we are all safe to travel again. I’m happy to report that we have two new patient groups in the Asia Pacific [...]
From CEO Fiona Wardman, HAE Australasia HAE Australasia held its strategy meeting during January 2020. This meeting brings together the HAE Australasia Board of Directors to discuss the projects and initiatives for the coming year. The Board is excited about the new projects the organization will be working on to bring more HAE education and [...]
From CEO Fiona Wardman, HAE Australasia: HAE Australasia has submitted the ethics application to join the Global Registry in Australia. We hope to have a positive answer very soon so we can start rolling out the project around the country. Once again this year, we attended the Australasian Society of Clinical Immunology & Allergy (ASCIA) Conference, where we had the [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
