From Chief Regional Patient Advocate Fiona Wardman There have been a few focused tasks and projects in the Asia Pacific region over the most recent months, including the rolling out the new member only access courses in Advocacy Academy. During this period, I have attended virtual conferences and symposiums for the region, including the [...]
Happy birthday to HAE Hong Kong! Congratulations to the team at HAE Hong Kong for their 2nd year of dedication to improving the quality of life for patients in Hong Kong. During the last few months, I have participated in meetings with various pharmaceutical companies to move forward access to modern therapies in the [...]
The Department of Paediatrics and the Department of Dermatology, Venereology and Leprology, PGIMER, Chandigarh jointly celebrated hae day :-) by holding a virtual conference organized by the Hereditary Angioedema Society of India (HAESI). The e-conference included lectures on various aspects of HAE by national and international experts and faculty of Departments of Paediatrics and [...]
Since the last magazine, there has been a focus on a few projects; a couple of these were the hae day :-) “Let’s Take the Next Steps” campaign and rolling out of the Regional Medical Advisory Panel project. All the member organizations within the Asia Pacific region had their history and plans for the [...]
This input is dated May 2021 >> View content in ভাষা In brief Name for organization: Angioedema Bangladesh 7 members at 1 Jan 2021 Name of approved HAE treatments: None Fun/interesting facts Poverty is high, but drastically improving. By 2050, 1 in every 7 people in Bangladesh will [...]
This input is dated May 2021 In brief Name for organization: HAE India 70 members at 1 Jan 2021 Name of approved HAE treatments: Tranaxemic acid Danazol Stanozolol Fun/interesting facts Diverse and inclusive. People are more affectionate and helpful towards each other. We can experience all kinds of weather [...]
This input is dated May 2021 >> View content in اردو In brief Name for organization: Hereditary Angioedema Pakistan 15 members at 1 Jan 2021 Name of approved HAE treatments: None Fun/interesting facts The world’s second highest mountain, K2, is located in Pakistan. Pakistan has all weather seasons at [...]
During the past few months, I have been working with member organizations in my region to nominate physicians for the Regional Medical Advisory Panel (RMAP) project. I am pleased with the confirmation from the nominated doctors who have accepted to be panelists. I look forward to holding the first RMAP meeting in the next [...]
The past few months have been busy in the Asia Pacific region with some exciting projects going on with the member organizations. I always enjoy catching up with each of the patient leads from all the member organizations to discuss plans and how to create awareness and education opportunities and build their capacity. I [...]
The Asia Pacific region is diverse in terms of how the member organizations are structured. The region has well-established groups and some in their infancy, the others, somewhere in between. Despite the COVID-19 crisis continuing in so many countries, some good work is still being done to continue to create awareness in the region. [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
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