Publications2019-02-20T13:51:27+02:00

HAE PUBLICATIONS

From here you can download publications about HAE

We are currently building this area of the resource center.

Missing a file? Don’t hesitate to contact us at info@haei.org.

State of Management of HAE in Latin America – 2015

Here you can download the 2015 HAEi report “State of Management of HAE in Latin America”

English version – “State of Management of HAE in Latin America”

Spanish version – “El Estado del Manejo del AEH en Latino America ”

Portuguese version – “O Estado da Gerência da HAE na América Latina”

State of Management of HEA in Europe – 2015

Here you can download the 2015 HAEi report “State of Management of HAE in Europe”

English version – “State of Management of HAE in Europe”

Other languages to follow.

Support Family Testing

Hereditary Angioedema (HAE) is a hereditary disorder. It is therefore very important to have other family members tested. To help you in this process HAEi has developed two documents for patients and another document for physicians. You can download the documents below:

Support Family Testing – Patient Pack I

Support Family Testing – Patient Pack II

Support Family Testing – Physician Pack

State of Management of HAE in Europe – 2011

Here you can download the 2011 HAEi Patient Advocacy Forum report “State of Management of HAE in Europe”

English version – “State of Management of HAE in Europe”

German version – “Stand der HAE-Behandlung in Europa”

Spanish version – “El Estado del Manejo del AEH en Europa”

Italian version – “Stato della gestione dell’HAE in Europa”

Danish version – “Europas nuværende behandlingstilgang til HAE”

Hungarian version – “A HAE kezelésének helyzete Európában”

Norwegian version – “Behandlingsstatus for HAE i Europa”

Czech version – “Stav boje proti HAE v Evrope”

Russian version – “Состояние лечения НАО вЕвропе”

Ukrainian version – “Стан контролюзахворювання на САН уЄвропі”

Guidelines and Consensus documents

Here you will find guidelines and concensus documents

HAE related topics that might interest you

Global Access Program

Helping to change the lives of patients with hereditary angioedema (HAE) with a medication access program

Global Perspectives

Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community

HAEi Connect Member database

Free, secure online membership database and communications platform for HAEi’s member organizations

Regional Patient Advocates

Constantly strive to improve the situation for HAE friends all over the world – no matter how they are organized

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HAE Global Conference 2018

This 4th HAE conference was record breaking: A total of 736 patients and care givers participated from no less than 57 countries

HAEi hosted websites

Hosting of your national website or help for you to create a new website – naturally all in your native language