From Regional Patient Advocate Maria Ferron These last months have been hectic due to the organization that the 2022 HAEi Global Leadership Workshop entails, but we were all excited to meet face-to-face again after such a long period. Firstly, I would like to say that I have delivered the posters developed by HAEi requested [...]
From HAE Algeria For this second year of our existence and to celebrate hae day :-) 2022, HAE Algeria choose the casbah of Algiers to be its exclusive destination. This antic city, dating back to the 10th century, is a citadel overlooking the magnificent Algiers Bay and it has been classified by UNESCO as a [...]
From HAE South Africa We started an awareness campaign running up to hae day :-) and began by filming three patient stories for inclusion on our social media platforms. We managed to secure seven interviews with various radio stations around the country in the run-up to, and on, the awareness day. We had ten [...]
From Chief Regional Patient Advocate Fiona Wardman The last few months have been busy in the countries in the Asia Pacific region and South Africa. As the 2022 HAEi Global Leadership Workshop invitations have been sent out to the Member Organizations, there has been a lot of interest, and registrations have been completed. I’m [...]
From Regional Patient Advocate Patricia Karani Every year patients living with HAE celebrate life and hope on (and/or around) the annual HAE awareness day. This year HAE Kenya participated in the 1st Stakeholders Workshop for Rare Diseases in Kenya. KEMRI, Cambridge Africa, and Rare Disease International supported Rare Disorders Kenya and started a Call-to-Action [...]
From Regional Patient Advocate Maria Ferron This period has been really exciting and active for several reasons. Firstly, due to changes in the pandemic situation, we are allowed to go back to more face-to-face meetings, and it is nice to see again members of our HAE community. Also, after more than two years, the [...]
From Vice-President Salah Alioui, HAE Algeria HAE Algeria organized its first national HAE awareness day on 25 December 2021 at Lamaraz Hotel in Algiers. The day was under the patronage of the Minister of Health and the Minister of the Pharmaceutical Industry. The slogan “Speaking out, gives hope! Taking actions, saves lives!” was chosen for [...]
From HAE South AfricaOn 11 January 2022 HAE South Africa embarked on a new social media campaign. As of 28 February, our Facebook reach was up by 955% compared to the previous period, with our Instagram reach growing by 330%. Our new website will be launched in the next couple of weeks.>> Have a look [...]
From Chief Regional Patient Advocate Fiona Wardman For the last few months, I have focused on catching up with the Member Organizations in the Asia Pacific region and South Africa via virtual means. It seems that everyone is looking forward to once again being able to meet face-to-face. The latest tools and resources have [...]
From Regional Patient Advocate Patricia Karani In Namibia, a new HAE patient was diagnosed. We have been working with the physician to ensure that the patient receives the best possible care with the treatments presently available. In Eritrea, a family with HAE has been found, and we are working to find a local physician [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
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HAE International (HAEi)
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8700 Horsens
Denmark
gro.ieah@ofni
